Parents of Maple Lake boy with rare neurological disease raise awareness in hopes of finding a cure | KSTP.com

Parents of Maple Lake boy with rare neurological disease raise awareness in hopes of finding a cure

Ellen Galles
Updated: April 04, 2021 08:02 PM
Created: March 30, 2021 05:31 PM

Hoyt Lambert, 20 months, is battling a rare neurological disease called KIF1A associated neurological disorder, or KAND. It's a degenerative disorder recently discovered about 10 years ago, caused by a mutation in one of the genes. KAND can effects a patient's brain and body.

In Hoyt's case, he has to wear a helmet because he struggles to balance.

"He has mobility issues. His coordination and balance are impaired to the point where he has trouble standing, walking and crawling," his mom, Bryn Lambert, said.

But perhaps the most difficult part: KAND is so rare, there is not much information about it, let alone treatments or possible cures.  According to KIF1A.org, there are only about 300 known cases worldwide.


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